The uncertainties that accompany multiple sclerosis (MS) are among the biggest challenges faced by people with the disease, with two-thirds of patients in a recent survey saying “they’re scared for the future” because of such unknowns, the MS Society, which conducted the U.K. survey, reports.

“We may all think the future seems uncertain. But people with MS have told us an MS diagnosis can feel like a life sentence of uncertainty,” Sarah Rawlings, the society’s executive director of research and external affairs, said in its announcement. MS symptoms can come and go, be mild or more severe, and their progression is difficult to foretell, making MS “unpredictable and different for everyone,” Rawlings added. “Our latest research highlights how this can have an enormous impact on people.”

Click here to read a copy of “The uncertainties that accompany Multiple Sclerosis” in PDF Format